DART is a group page which aims to serve the needs of the newly diagnosed as well as those who've already gone from diagnosis to treatment.
Being newly diagnosed can be bewildering and the learning curve is steep. The good news is that you've landed in the right place to join a forum which has tons of information. Please do not limit yourselves to reading on the main forum page if you choose to join DART. We have a great deal of helpful information in Files and Albums (go to Photos, then tap Albums). We encourage you to read as much as you can before you start treatment. We have a list of questions for you to take to your first hand consultation with your hand doctor or first radiation oncologist consultation. See the Files tab. We also have a directory of providers, information on RT aftercare, and so much more.
There is no known cure for Dupuytren's, Ledderhose or Peyronie's diseases, or Garrod's knuckle pads, all of which are linked diseases of connective tissue. Radiation is not a guaranteed way to stop the progress of the disease, either, but it has worked for many who have tried it. Our goal is to be supportive of members who need information about the disease, to direct them to resources and to be empathetic, providing a sense of community with other forum members who share their personal stories.
We will also strive to work with researchers on a study about the safety and efficacy of Radiation Therapy and to encourage collaboration between Hand Surgeons and Radiation Oncologists so that patients get access to Radiation Therapy care and improve outcomes. We hope that Radiation Oncologists will partner with us to work towards our goals. We have an opportunity to change the course of history for millions of sufferers worldwide.
DART is open to honest and genuine discussion about all issues facing Dupuytren's and Ledderhose patients but our special focus will be on timely intervention with radiation therapy (RT).
This forum is administered by a knowledgeable group of fellow disease sufferers and lay people. Additionally, we are fortunate to have a number of Radiation Oncologists and hand surgeons who serve as our forum experts and participate in our 'Ask A Doctor' corner found in our Albums section. As such, the information provided on this page, both in Files and in our daily discussion threads, does not constitute medical advice and it is the responsibility of each forum member to do his own research, including consultations with medical doctors before making any decision about treatment. Tagging of doctors should be done by admins only, unless it is in response to a follow up question that has been answered by a doctor in Ask A Doctor.
A word about conduct on the forum: Kathleen Hamel, Martin Sharman, Earl Thomas, Jan McGirk, David Everest and Brenda Fortner are administrators. We expect everyone to be respectful of fellow members.
We welcome you to post away with any questions along the way and share as much as you can about your disease and treatment experience. Welcome again to our DART community!
JOIN US HERE: https://www.facebook.com/groups/1622748151282109/
WHAT IS DART
DART is a Facebook forum that joins people across the world that are seeking information on our disease AND possible treatment options for our uncurable, benign disease.
HISTORY OF DART
DART was started in 2015 by a group of people who all are afflicted by Dupuytren's and Ledderhose disease. They wanted to create a focused forum, led by members for the discussion and advocating for Radiation Therapy (RT). It is our hope that others will share this information and learn of this non-invasive treatment and facilities where people can get treated WORLDWIDE. We also added several forum VIP Doctors who volunteer to answer questions of our members. Our forum was quickly embraced by our Dupuytren's and Ledderhose sufferers since RT is our best chance to put our disease into a non-progressive state.We have since added many different types of Doctors, as well as support personnel in the medical field that have wanted to increase their knowledge, learn of treatments available and network with treating physicians to bring treatment to their location.
WHY WOULD I JOIN DART
Joining our forum gives you the ability to directly talk with people that have real life experiences, people who actually have the disease and are navigating living with the disease (and most for years). To us, we feel this is a source of better information than the physician you may be seeing that may see 1-2 people a year with this disease. We live with this benign disease everyday and members want to share the many different types of therapy/aids they have used to help live with the disease with the least discomfort or pain. You may also be a caregiver or have a family member or friend affected by this disease.
WHO CAN JOIN DART
Anyone wanting to learn more about this disease can join You may be a friend or family member, or even caregiver of someone with this disease. It is not uncommon to find Doctors or other medical professionals as part of our group. These professionals may have our disease, treat our disease or joined to learn more about our disease. Our forum members liberally share our forum with their providers in hopes these professionals will learn more about our disease and know that other treatment options are available and in turn pass that information onto the patient.
DO I HAVE TO POST IN THE GROUP
No you do not. While we feel it is easiest and faster to ask questions and have members respond, we do not have any requirements of your posting your story or any personal information, etc. You are welcome to scroll thru our forum and read thru our huge volume of information via our FILES tab or our PHOTO album on our forum.
A word about Facebook Groups
There are numerous Facebook Groups for this disease.
With no cure for this disease, you may find being a member of all of them may help you
We do not believe one forum that has more power, influence or information than another
Expert doctors/Forum Doctors are on all of the Facebook forums to answer questions
All forums are all admin'd by layman, not a medical provider
W E L C O M E
DART - Dupuytren's Advocates for Radiation Therapy
A Worldwide Facebook forum led by members to discuss privately how to cope with the disease and treatment options available
DART - Dupuytren's Advocates for Radiation Therapy