Related Diseases

  • How did I get Dupuytren's or Ledderhose Disease?
  • What does this mean to me for the future?
  • What type of treatment options are available?
  • Who treats these diseases?


Our forum members or our volunteering  forum Doctors

will answer all of these questions for you.


Our Facebook Forum is ALL about Dupuytren's Disease and its affiliated disease, Ledderhose (in the feet).

What is Dupuytren's Disease?


It is  an incurable disease of the connective tissue of the hands, feet and penis

.

  • Feet     - Ledderhose Disease -  Nodule(s) in the arch of the foot.
  • Hand   -  Dupuytren's Disease  -   Nodule in the palm and then a cord
  • Hand   - Dupuytren's Contracture  - Bent fingers
  • Penis   - Peyronie's Disease - Characterized by a curved penis.


    Who Treats Dupuytren's Disease? (palmar fibromatosis)


     
    Some of the most qualified are Certified Hand Surgeons (CHS). CHS's begin with board certification in their primary medical board (either orthopedic surgery, plastic surgery or general surgery), then complete a one-year Hand Fellowship and pass a board exam to get their Certification in the Subspecialty of Surgery of the Hand (formerly called CAQ Hand). With that certification, they become a CHS. 

    Some orthopedic surgeons, general surgeons or plastic surgeons might also treat your hand but are not CHS. There are also physicians in other fields who occasionally might do NA (needle aponeurotomy) or administer Xiaflex (collagenase). 

    The primary treatments offered by these doctors include NA (needle aponeurotomy), Xiaflex (collagenase) and traditional open surgery.  Other treatments include cortisone injections or hand splinting.


    Radiation oncologists are specialists who treat both Dupuytren's with low dose radiation therapy to attempt to stop the progression of the disease. Radiation therapy also provides much needed relief from pain from most patients.

    Real People, engaging others

                           DART

    Dupuytren's Advocates for Radiation Therapy

    Dupuytren's is used as an umbrella term for Ledderhose, Dupuytren's Disease and Dupuytren's Contracture.

     Dupuytren's

    Disease

    vs.

    Contracture


    Some of your first questions are :

              DART - Dupuytren's Advocates for Radiation Therapy

                     A Worldwide Facebook forum led by members to discuss privately how to cope  with the disease and treatment options available